Honor Flight

Honor Flight

Dr Gordon had told me to call him if my knee still hurt after the swelling went down and he would order an MRI. After a couple of weeks, it was clear that my knee was not going to heal quickly. It was still swollen. I was wearing the brace, and struggling with pain, lost range of motion, and a limp. I was determined to be ready to walk all over D.C. with my dad for the Stars and Stripes Honor Flight on Oct 14th, but I wanted to know what was going on with my knee before the trip.
I had the MRI on Oct. 3rd and scheduled a follow up with the doctor on Oct 11th. Dr Gordon came in to the room and told me that my MRI “threw him for a loop.” He pushed and pulled on my knee again, just to make sure it still felt stable and that “he wasn’t an idiot” (his words). He said he never misses this type of injury upon physical examination. Yet, the MRI told him quite a different story from the physical exam. The MRI showed that I had a complete PCL (posterior cruciate ligament) tear in my knee. That can’t be good. I have experience with complete ligament tears (elbow and rotator cuff), and I know that they do not heal on their own. My first sinking though was, “one more surgery.” After all, the PCL is the strongest ligament in the knee. How can I get through life without a PCL? He did not suggest surgery, though. Instead, he said I should do six weeks of physical therapy to see if I can heal without surgery. That blew my mind a little.

While we were there, Andy took the opportunity to ask him about his foot. Right away, he told him that Andy had his least favorite injury. He said that if Andy was his patient, he would put him in a cast for 6 weeks. For now, he advised that Andy wear the boot 24/7. Andy decided to schedule his own appointment with Dr. Gordon.
Before we left, I asked him if my knee could handle a day of walking around D.C. He was fully supportive of the trip, and told me to thank my dad for his service.
By the 14th, I was feeling strong enough to go on the Honor Flight. I figured I would be able to keep up with 150 WWII Vets. I might have been wrong about that assumption, though. The day was very fast paced and we did a ton of walking. We saw all of these memorials in one day!


Arlington National Cemetery
Air Force Memorial
Pentagon Memorial
Korean War Memorial
Lincoln Memorial
Vietnam Memorial
WWII Memorial
FDR Memorial

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I’m so glad I got the chance to go on the Honor Flight. It was one of the most memorable days I’ve had with my dad. We were pretty tired out by the end of the trip, but the homecoming at the airport gave us a boost of energy. I’ll always treasure that day.

 

 

 

A Phoenix and a J-Hawk

It was only two days after being hit by the Jeep, but I didn’t want to miss the annual Team Phoenix fundraising 5K at InStep. I needed my Team Phoenix sisters! If anyone can encourage me to rise up after being knocked down, it would be my strong Phoenix family. It was great to get off the couch and see everyone. I obviously did not do the 5K, but Coach Lauren set me up to direct traffic at the final turn, so I felt like I was participating. I may have thrown a few people off their race times, when they stopped to check on me, but it wasn’t a competitive 5K. I even joined a couple of friends to walk the final stretch to the finish line. I was getting around pretty well with the crutches, thanks to the cutting edge instructional video at the ER.

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While we were there, I asked the PT at InStep take a look at Andy’s foot. We were thinking he could fit him for a shoe insert that would help relieve his pain. He put his finger on the spot where Andy had been having pain, and Andy almost went through the ceiling. That gave us a name for his problem- it was call posterior tibial tendon dysfunction. The PT said it is a very difficult injury to recover from and told Andy he needed to wear a boot to immobilize the foot so it would have a chance to heal. Finally, I felt like we were on the way to taking care of Andy’s foot pain.
Dr. Tjoe, the doctor who started Team Phoenix, was there and, always looking out for the well-being of her Team Phoenix ladies, checked up on me. She asked if I had an orthopedic surgeon. My favorite orthopedic doctor had retired shortly after my rotator cuff surgery, and I hadn’t found a surgeon I liked since them. She offered to make a few phone calls to her orthopedic surgeon friends. How could I pass that up. As I was getting ready to leave InStep, someone came out with the store phone, looking for me. It was Dr Tjoe, asking if I’d be available that evening to be seen by Dr Gordon. On a Sunday? Of course! She had him call me and we arranged to meet Sunday evening at 5:30. It turns out that he works out of the same office where my favorite orthopedic surgeon used to work. I felt very lucky to be in such good hands. I’m blessed with doctors who go above and beyond to look out for my well-being.
He did a complete exam of my knee, and said it felt fairly stable, but was too swollen to determine any more. He gave me a better knee brace than the ER had given me, told me to keep up with the ice and ibuprofen, and wait for the swelling to go down. He thought I still wanted to do the triathlon in a week, and seemed to think that might be reasonable. I had no intention of doing a triathlon as banged up as I felt. He works with professional athletes, so I assume he sees a fair number of people playing through their injuries. I am not at that level, and know when to take a break to let my body heal. He said if it still hurt after the swelling subsided, he would order an MRI. Back to waiting.


On Sunday September 24th, my family went to the J-Hawk triathlon in Whitewater. I wanted to cheer everyone on, and my kids were still signed up for the kid’s race. It was a rare, hot September day. My kids did the tri despite the heat, though I think they were miserable. I am so proud of them for sticking with it. I was still on crutches and it was a long day on my feet, but I was happy to be a part of race day with my friends. I would have preferred to participate with them. I’m not a fan of having limitations slapped on me. I’d have to get off the crutches soon and get back to training for the next triathlon!

Friday, the 15th – Setback Number X

All of a sudden, I was on the ground, a stream of curses flowing as fast as the tears. I was yelling at the white Jeep that just hit me, throwing me off my bike. I hollered at the driver “what the f#@&*^%! are you doing?” I paused for a moment when I realized my phone was still within reach on my bike’s handlebar mount. I wanted to call Andy. Crying and cursing, I dialed and said, “I just got hit by a car.” I wanted him there.

I couldn’t believe what just happened. I’ve been riding my bike all my life, in all sorts of conditions, including chaotic, urban streets. I’m a safe and defensive rider and have always felt confident that I would stay safe. I’ve had a few close calls before, and even a couple of wipe-outs, but I never imagined that I’d get hit by a car. It didn’t feel real.

People started to gather around me. One man wanted to help me in the worst way, but there wasn’t much for him to do. He wanted to make sure I was okay. He wanted to move me off the street. I wanted to wait for Andy. Oddly, he wanted to keep pouring water on my skinned and rapidly swelling knee. I asked him to stop because he was using up my drinking water! Another woman stopped and called 911. An impatient commuter started beeping at the Jeep so she could get out of the parking lot. I wanted to tell her, “Calm down! I just got hit by a car-my day is not going as planned either! Why can’t you take a minute out of your routine to wait and make sure all is well instead of impatiently blasting your horn?” All I could think was don’t disturb the “crime scene”. Don’t let the Jeep drive away. Get a picture. Get his license plate. It was a jumble of thoughts and tears. But the guy who was pouring water on my knee (still…), moved my bike and let the Jeep move out of the way for the impatient commuter. Luckily, Jeep guy did not leave the scene. He stayed over by his Jeep, making calls on his cell phone. He never said one word to me. He never apologized for running me and my bike over. He never gave any indication that he was sorry.

Quickly, the police and paramedics started arriving. I repeated my story over and over to each person. I was riding northbound on the bike path. The Jeep was stopped at the stop sign, I attempted to make eye contact, and then proceeded. The jeep hit the gas just when I got in front of it. It seemed to happen in slow motion, but I could not prevent it. I watched as the Jeep mangled my bike while I was tangled underneath it, my legs getting contorted and banged up as it twisted under the force of the Jeep. My elbow, hip and knee hit the concrete with a hard impact.

That split second changed my day. I had just been feeling invincible-on top of the world. In the next minute, I was sitting in the street, in tears, in pain and unable to move my knee.

The paramedics were asking me questions and checking me over while the policeman was assuring me that cases don’t get any more clearcut than this scenario. I was in a marked crosswalk. The Jeep had a stop sign. He reassured me that it would be clear in his report that the driver was 100% at fault. That’s great. Except that I was lying in the street, broken, next to my Team Phoenix bike, which was mangled on the side of the road. (Andy’s line is, “how does it feel to be right?) I was watching my goals for 2018 slip to the back burner for yet one more setback in a long string of setbacks. I couldn’t bend my left knee. Damn. Honestly, my left knee is (was) the one part of me that isn’t damaged…

Andy arrived and I started to feel a little less hysterical. He had called his employer, Bell Ambulance, and they soon arrived on scene, too. The second cop was a little cranky about it when I told him that I would be using Bell if I decided to be transported. He said that’s not how it works. Cudahy rescue was here, and if I wanted transport, I’d have to go with Cudahy rescue. I told him that was not my understanding of how it worked. I looked at the paramedic, and asked, “in your opinion, would you even suggest ambulance transport for these injuries?” He was noncommittal, but told me that I could sign to refuse transport. So I did that and then started talking to Bell’s paramedics. Being full of grit and determination, I really didn’t think I needed to go by ambulance. I just wanted Andy to drive me to the hospital. It was less than a mile away. It was a struggle to get in the car, because I couldn’t bend my knee much, but I got in and then the policeman came over to finalize his report and wish me luck. The Jeep guy’s friend also came over to apologize, but the man who hit me still never said a single word. He altered the trajectory of my life. I wonder if there was any consequence to his.

In the meantime, Andy loaded my bike onto the car while I sat in the passenger seat. Usually, I lock my bike to the rack, but something told me that nobody would steal a mangled bike off a car that was parked at the emergency room.
On to the ER. I did promise Andy that I would take him to a doctor to get his foot checked and we were on the way to see a doctor. Maybe we could get a two-fer. The nurse just laughed. Why is it that they always think I’m joking? Honestly, I wasn’t trying to get out of taking care of Andy.

He insisted on getting a wheelchair to get me into the ER. I didn’t object. Much… We spent the next three hours getting my injuries checked out. There was a physical exam, and x-rays of my knee and femurs. My knee was becoming increasingly swollen and the bruises started to appear on both thighs and right shin, where the bike frame struck me. My left hip had huge bruises, too, from hitting the concrete. The X-ray tech kept asking me to position myself in various ways on the table, each position hurting more than the previous one. The last one was extremely awkward. At least they got good images.

Luckily, nothing was broken according to the x-ray. They gave me pain pills, a knee brace, and asked if we wanted to watch a video on “how to use crutches”. I said no. How hard could it be? But Andy thought a little entertainment was a great idea, so we agreed to watch the video. I’m glad we did, because it put me in a better mood. The nurse literally wheeled in an AV cart set-up straight out of my 80s high school days. A CRT TV sat on the top of the cart and a VCR on the bottom. She popped in the VHS tape (I am not kidding!) and the ensuing video took my mind off my pain. It was hilarious-so hilarious that I did not pay any attention to the tips on using crutches. I think I figured it out pretty fast, and I made my way out to the car to get home to start recovering and re-calculating my plans for the year. It wouldn’t be the first time I’ve had to work around a set back.

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Friday, the 15th

It was Friday, September 15th. I woke up feeling great. I drove the kids to school, and then back home to get ready for my morning bike ride through Grant Park. I smooched my husband a bit (we’re newlyweds) and tried to get him to come biking with me. He’d been struggling with foot pain all summer, so he didn’t want to join me. As I was getting ready to ride, I told him, “that’s it, I’m taking you to a clinic today to get your foot checked out….”

“AFTER my bike ride.”

Andy is the kind of guy who takes care of everybody else first, and doesn’t want to complicate things by imposing his own problems into the mix. He has taken such good care of me through so much, and I want to be able to do that for him, too. Sometimes, I have to force him to let me take care of him. I had to get him to the doctor. His foot pain had gone on too long. Nothing was going to prevent me from biking on a morning like this, though. It was an absolutely ideal morning for a bike ride. The temperature was in the 60s, there wasn’t a hint of wind, and the blue skies were perfectly clear. I’d get home before the clinics opened, anyway, and then I’d get him to a doctor.

I put on a long-sleeved shirt and biking pants, but decided not to wear my bicycling shoes that clip into the pedals, because they’ve been making my feet go numb when I ride. Instead, opting to wear my running shoes. And off I went. My favorite part about living here is the fact that we are right on the parkway off of Grant Park, which gives me over 20 miles of beautiful, off-road biking paths right at my doorstep. Being a part of Team Phoenix has re-ignited my love of bicycling, and my morning ride through Grant Park has become my favorite way to start my day strong. I ride early, so I often have beautiful Grant Park to myself. I get to enjoy the sun rising over Lake Michigan, fresh morning air, and I usually see wildlife. I use this time for morning meditation. It has become a rejuvenating part of my life.

It’s been a long recovery from my DIEP flap surgery in January. I’ve been in pain, and haven’t regained my full strength or mobility. I was getting stronger all the time, though, between my regular swimming and biking. In one week, I would be doing my second sprint triathlon of the year with my two daughters. The first triathlon was at the end of July, and I almost dropped out of it. I pulled a muscle in my back in early July pulling a weed out of the ground. Something had to give, and it wasn’t going to be the weed. The muscle in my back snapped so hard that my knees buckled and I fell to the ground. After an ER visit, rest, ice, and ibuprofen, I was back to swimming and biking, but not ready to run. I did not feel ready to do a triathlon, but my family and friends encouraged me to stick with it, and I did it!


That morning, I was feeling particularly good. For the first time since surgery, I felt ready for the upcoming triathlon. As I made my way through the park, I was reflecting on how far I’ve come since my cancer diagnosis. I felt strong and fully in sync with my bike as I sailed effortlessly across the winding path. It reminds me of a feeling I get as a motorcyclist, when I’m so in tune with my bike that it becomes an extension of me. It is a liberating feeling. My muscles control the bike subconsciously, leaving my mind and body and all senses free to fully immerse in the surroundings. That was the state of mind I was in and my thoughts turned to my up-coming goals. I’ve been keeping a “50After50” Bucket List of 50 big, high reaching goals that I want to achieve after my 50th year on this planet. Think Big. Aim High! I was feeling strong and had decided to sign up for the 2018 IronMan in Madison. I had watched my niece, Tamra, and some of my Tri-Faster and Team Phoenix friends do the IronMan this year, and I wanted to experience it. I’ll need to be strong to tackle some of the things on my bucket list (kite-surfing, hiking the Inca trail, hitting all of the National Parks, exploring the world on my motorcycle)! What better way to prepare?

My goal this summer was to have a strong recovery from DIEP surgery and go into the second phase of surgery strong. The plan was to do the triathlon on Sept 24th, accompany my dad on a Stars and Stripes Honor flight on October 14th, and then tackle the next surgery in November, so that by 2018 (and my 50th birthday!) I could hit the ground running and live big.

All of these reflections were in my mind as I came up out of the park, nearing Cudahy, where the bicycle path crosses the entrance to a parking lot. As I approached the driveway, a Jeep was coming out of the parking lot. I slowed way down as the Jeep came to a stop at the stop sign. I did what I always tell my kids to do. I say, “Never assume the driver is going to see you. Always make eye contact.” I paused and looked at the driver. I even said out loud, “Do you see me? Are you stopping? You are stopping, right?” And I proceeded to cross (at the marked crosswalk).

He did NOT see me. It seemed surreal, almost like he intended to scare me. He suddenly hit the gas, but surely he would stop again before he got to me. Then he hit the gas again and soon his big, white Jeep was riding over my bike, with my legs tangled under the bike frame. I was thrown to the concrete-Hard.

Phoenix Rising

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In 2015, I did my first sprint triathlon shortly after completing cancer treatment. It was a clear, redefining moment in my life that I will always cherish. Next weekend, this year’s group of courageous women will complete a triathlon. As a Team Phoenix athlete, and now a volunteer for the team, I am inspired every day by the powerful changes that the women of Team Phoenix undergo as a result of this remarkable program. Please consider donating to show your support and help many more women experience this transformation. #phoenixrising #TeamPhoenixStrong

 

New Car Smell

Imagine you really need a new car. You save your money. You do all the research ahead of time, and find the best dealer. You pick out just the car you need and ask the dealer how much it costs. The dealer tells you that he can’t tell you a cost on the car until after you sign the deal. All the research you do turns up a huge range of prices that the car might cost you, rendering that information useless. Imagine, too, that your “savings” for the car was being held by a company. The company tells you that after you buy the car, they will let you know if they are going to let you have the money for the car. Would you still buy the car?

I’ve been a consumer for quite some time. I always do my research and get my costs upfront in the decision making process. Then I can negotiate and decide whether the cost is worth it. The above scenario sounds absurd, doesn’t it? Most of you would probably walk away from that deal, right? But that is how the scenario plays out in the medical field. There is no transparency in the pricing of medical services. First, patients get the services they need and then deal with the bills (and the insurance companies) after the fact.

Months before my surgery, I was back and forth on the phone between the hospital and my insurance company trying to ensure that this surgery would be covered. Surgery was even delayed while waiting for pre-authorization from the insurance company. I also wanted an estimated cost so I knew what I would be facing if I had to pay a portion of the costs out of my own pocket. I was mostly concerned about the lymph node transfer, which is still seen as “experimental” in the US.

The surgeon himself was confident that the breast reconstruction would be covered. He also told me that the lymph node transfer was most likely to be covered in conjunction with the reconstruction surgery, as opposed to if we did just Lymph Node Transfer. The Women’s Health and Cancer Rights Act of 1998 requires all group health plans that pay for mastectomy to also cover prostheses and reconstructive procedures. I never had any trouble getting coverage for my mastectomy or other reconstructive surgeries, so I was confident my insurance would cover this procedure. I had to trust that all would work out (which is why I pay that huge monthly health insurance premium) and I scheduled the surgery.

However, neither the hospital nor the insurance company would give me an estimated cost of the surgery and hospital stay. Neither would confirm whether the surgery was going to be covered by my insurance or not. I had the hospital tell me the billing codes, but the insurance company still wouldn’t tell me anything until after a claim is submitted. The insurance company pointed me to their online “cost calculator” so I could get an idea of the cost. The range was so large, it was not helpful. The hospital simply said that they would “go to bat for me” if the insurance company denied coverage (after the surgery). This was all the information anyone would give me on cost and coverage before I made the decision to proceed with the surgery.

Hundred Bill CornersBefore the hospital gown hit the bottom of the soiled linens hamper, the ink was dry on the letter from the insurance company. The ink was dry on lines stating “we have determined that the service is not medically necessary,” and “We did not receive any other medical information to make a decision about your admission. We do not have your test results. We do not have reports about your care. You were admitted 01/06/2017. Your admission is not covered.”

The letter was dated 01/09/2017. It was stamped before I was discharged from the hospital, and waiting at my house when I returned home from the hospital. I’ve never seen an insurance company work that fast. It certainly takes longer to process claims and PAY bills. Why would they subject someone to the anxiety and stress of facing medical bankruptcy before they even have all the information from the hospital? I bawled when I read this letter. Truthfully, though, I am not worried (yet.) Once they receive the information from the hospital (and my appeal to their decision to deny me coverage), I feel that they will have to cover this surgery. What frustrates me is the fact that I have to appeal and fight the insurance company. I’m upset that they didn’t wait until all the information was gather from the hospital before sending me a denial. “We do not have results,” “we do not have reports.” Well, GET the results and the reports and THEN tell me what is covered or not covered. I am trying to heal from major surgery. I do not need the added stress.

Thank goodness I’m starting a new career. I may need every penny to pay for this. Who’s buying and selling Real Estate? Call me.

I don’t even like that new car smell.

Waking Up is Hard to Do

Waking Up is Hard to Do

Everything went black as they wheeled me through the operating room double doors. The next thing I remember was faint sounds and confusion. A male nurse was introducing himself and telling me that it was time to move out of recovery and into my room. I gathered that he was in a rush, and everything seemed a bit disjointed. I faded in and out of sleep and don’t remember much.

What I do remember from the first night was extreme thirst. I’ve never been so thirsty in my life. I was not allowed to drink anything in case they needed to rush me back into surgery. Those first hours are critical for the blood vessels to connect to the flap (as boob #2 is now called.) I was too out of it to help myself, and am so grateful for Andy, who stayed awake by my side all night. He was able to use a little sponge on a stick to put water on my lips and inside my mouth. I think I begged for water all night. At some points, my mouth was so dry that my lips stuck to my teeth. The nurse finally slathered vaseline on my lips and that helped quite a bit.

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I also remember feeling my right arm puffing up like a balloon. Lymphedema does not like the trauma of surgery. I remember the nurses coming in every hour to check my vitals. I’d wake up enough to ask for water and push my pain med button. They used a doppler radar to listen to the blood flow to the flap. It sounded like a baby’s heartbeat. I couldn’t tell you much else about the night. I don’t know if I ever actually opened my eyes. I do remember once, when the nurse asked me if I needed anything else, I said, “a giant glass of water, please.” I did not get a giant glass of water. By morning, I was so parched I couldn’t talk. All I wanted was water, sleep and serenity.

Then, all of a sudden, there was a grating, raucous conversation that seemed all about sunshine and happiness but with a nasty undertone. It was the nurse’s shift change, and the raucous one would be my caregiver for the next twelve, long hours of my life. She was syrupy-sweet on the surface with an underlying toxic passive aggressive core. Let’s call her Nurse Saccharine. She managed to hold on to her tight smile as she insulted and criticized everyone around her, loudly. She crashed into the room, jolting me out of sleep every hour to check my vitals. She would be in charge of getting me to stand for the first time, which is never pleasant, even under the best of circumstances. She kept popping in telling me excuses and delays. In the meantime, the physical therapist came in to get me up for a walk, but I still had a catheter and was connected to drain suction on the wall. I told her the nurse was coming after lunch to get me up, so she arranged to come back around 1:00. Well, Nurse Saccharine did not like this at all. She thought it was ridiculous that the PT didn’t just do it herself and get me up.

I further inconvenienced her when I asked for additional pain pills before trying to get out of bed. This turned out to be a mistake, as she gave me something that made me very sick. Up until that point, I had a “magic button” that delivered dilaudid to me as frequently as every 10 minutes. It worked great on the pain, and didn’t cause nausea! A tough combination in my opinion. So now, nauseous and weak, it was time to let Nurse Saccharine pull my catheter and get me on my feet. Yippy!

The hospital bed did much of the work, but the final twist pulled hard on the fresh incision which spans from hip to hip. After the searing pain subsided, I put my feet on the floor and stood up. Next, three or four steps to the chair. I made it! I settled in and was finally able to sip on water. She told me that she would be back to get me walking to the bathroom in a couple hours. At this point, the water was too much for my stomach and just when the PT came to work with me, I started throwing up. I think this was Saccharine’s way of punishing the PT for not doing more earlier. We did not go for a walk. Instead, the PT wrapped my arm and I continued to sit in the chair feeling awful.

I asked for more anti-nausea meds, but the nurse said the doctor wouldn’t approve another one. I couldn’t keep the water down, and going on 30 hours without water, the nurse wanted me to pee. Not surprisingly, I could not. Saccharine threatened to put a catheter back in if I didn’t pee, so I started drinking my water a little more ambitiously. No way was I going to let this woman put a catheter in while I was alert.

I finally ordered some broth and jello to try to calm my stomach down. It was Saturday afternoon and time for the NFL play-off games. Andy came back from catching up on his sleep to watch the games with me. I slept through most of both games, though. The shift change came again and thankfully I got a much nicer nurse. She told us that the previous nurse informed her that I refused the additional anti-nausea meds. Imagine that. We told her that, despite begging for additional anti-nausea meds, Nurse Saccharine told us the doctor said no- an outright lie. Why would anyone make someone suffer like that? Once I got the nausea under control, I felt so much better. I had a pretty good night. I needed to rest up because the next day was the Packer game, and I didn’t want to sleep through that!

As 7am approached, and time for the shift change, I started feeling worse and worse, imagining another 12 hours with Saccharine. My whole day turned around when, at 7:15, a very nice nurse quietly came in my room and introduced herself as my nurse for the day!! No more Nurse Saccharine!! I later learned that Andy told them at the nurses’ station that we had trust issues with the nurse and did not want to have a repeat of the previous day! That made my day. Sunday was a turning point. I felt good. I could get up on my own, eat, manage the pain and nausea, and the Packer game was awesome!!!

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